Nile AI

This app has some problems. - the App Store says it is more than 4 years old. That’s weird since the company supposedly started in 2021 - the app uses a word “aura” which is not recommended by the international league against epilepsy - signing into the app I already agreed to not only share my private info but also to have providers make appointments for me. What??? - the app allows me to record seizures that I have IN ThE FuTURE - why can’t I put the time of my seizure? - the default birthday for some reason is 20 years before today. Why? - the app asks survey questions including about suicidality but does nothing if I say that I am suicidal - the app allows made up medication names with up to 8x per day dosing and does not seem to mind if I miss my meds - the app will contact the doctor to enter information about me. What if I don’t agree either the doctor? - this company was clearly funded by UCB who contrived 29 million dollars. Why don’t I see mention of that little disclosure anywhere? - what exactly will Nile do with my information? Will they use it to figure out how to better advertise the most expensive drugs to my doctor? - what control do I have over my data?

Nile is a long-awaited type of app for me. Once the seizure is past, pull out your phone (that is small and always with you) and log it while it is as fresh in the mind as possible. It is so easy to log my seizures, I love it! As a beta tester, I had time to look for flaws. The Nile developers did an excellent job! When you log a seizure, you are given the option to make the aspects of the seizure a default selection. Name your common ones and you can flag multiple aspects with a single tap! Logging the time is easy as there are morning, midday, evening, and night (not overly specific clock times). You are given a bar chart mapping how many seizures you logged each day over the past week. You can look at numbers for the past month (and three months) too. The fact that Nile can send results to your neurologist gives your doctor details before your appointment. Do what you can to get that set up to save appointment time for everyone. Put Nile to use! You will be happy you did.

I was one of the beta testers for Nile; When I first starting using it I was suffering from zero self confidence and constant fear of what to do when I have another seizure episode. After using this app and being able to truly feel linked to my neurologist and the daily medication reminders I feel like a new man. I can’t forget the articles it provides you with to read either, because they set my confidence straight along with my heart; I’m working my favorite job along with dating the love of my life❤️