Epsy: Seizure Log for Epilepsy

I have been using Epsy for almost a year. I used to keep seizures and medications in notes and of course that is not sustainable. Not only can you track seizure activity accurately, with time and duration of seizures, you can log notes and videos. This is very important as so much can happen in a week that there is just no way you will remember it all. When dealing with doctors, nurses, ER staff, you know how cloudy your own brain can feel due to the situation. Epsy makes it so much easier to hand them an accurate history of seizures, medications and even situations that may cause seizures. Yes!, you can log that too. I just can’t say enough. The app and the staff are awesome! Over the last six months I have had to contact Epsy for a couple things and they have been very responsive. There are a lot of apps out there, but this one has a human connection that I love. I don’t want to converse with AI… ever. I love this app. It has made a very stressful part of this situation, much more bearable. We also deal with separate households and this app removes the stress of having to go over everything with Dad each time they hang out together. Dad and I both feel like we know exactly what’s been going on with him and he too can log seizures and medications while he is away. Thank you Epsy team! Please keep up the great work!

Living with intractable epilepsy there are constant changes in medication type and dose and many other variables. This app if kept with at least a few times a week and after any seizures can work as a great tool to understand your condition and how it changes. You can look back months or years and use the accesses information to share with doctors or caretakers. It also works great to track medication changes so you can see if they possibly correlate to any changes in seizure type or frequency. I have found this app to be, more than any other, an integral component to my illness tracking and reporting. It would be great if they added seizure detection to the app as I have no idea when my seizures occur and rely on others to inform me of occurrences.

I haven’t used the app very long but I noticed there isn’t a way to track how long the seizure lasts. It gives you the option to track when it starts but not when it ends and for people who have seizure episodes that stop and start back up in the same time frame, it would be nice to have this option that way you can see how over time it trends on a graph. I would like to also see a video recording option so when you have your phone or other device around, you are able to instantly record the episodes and what they look like for doctors to be able to view and give insight. In addition, when you open the app, an automatic timer option should appear so those who need to keep track of how long a seizure has lasted can do so not only for themselves but especially if they are caring for a loved one or patient in addition to if any rescue medications were given and type, dose, etc. Other than this things, the app works well.