App Profile: RareGuru: Rare Diseases
Android / Games / Puzzles
RareGuru: Rare Diseases
Installs:
Rating:
5.00
Total Reviews:
37
Top Countries:
US, CA, AU
< $5k
/mo
< 5k
/mo
Reviews: What People Think About RareGuru: Rare Diseases
Huge dice fan
Rating: 5/5
Wow I love RareGuru. You select your diagnosis and or symptoms if you wanna list your symptoms, then you get a selection of connections based on the information in your profile. You can make the list of your symptoms public or private and there’s even a symptom tracker. There’s no newsfeed or posting. Once you send a connect request and it’s accepted you get to talk one on one. So it’s like a community of people who share your diagnosis or symptoms with one on one emotional support through those good and bad days. I’d highly download RareGuru cuz here on RareGuru you aren’t alone. If someone doesn’t share your diagnosis or symptoms that you know of, then download RareGuru and I promise there’s people out in the world. You just haven’t met them yet but on RareGuru you will.
GardenGrams
Rating: 5/5
I wish getting a diagnosis was as easy as using RareGuru. It was easy to set up and start matching with others. I have been diagnosed with several chronic conditions (all also in the app) but only recently diagnosed with a rare genetic disease after several family members were diagnosed. Turns out I’m the real patient zero 😆 now all of my other common conditions and symptoms are starting to trace back to my rare diagnosis. It took me 66 years to get this diagnosis and I’m glad to have this app to connect with others like me. I feel less isolated and more hopeful.
binary hipster
Rating: 5/5
This is such an inspirational app. I love the idea of bringing together isolated individuals and groups in the rare disease community to share and learn in a positive environment. This is what the internet was made for! After reading the founder’s story and some of the other shared stories on the blog, I’m really excited to see how this app grows. This has potential to be life changing for those of us who care for others or who suffer from a rare disease ourselves.
About RareGuru: Rare Diseases
If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru.
RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive.
Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process.
Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers.
Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision.
Don’t let your disease isolate you from the world. Connect and learn together with RareGuru.
RareGuru Features:
Connect, Share & Network
- Create a private or public profile sharing what information you’re comfortable with.
- RareGuru matches you with other users who share a similar diagnosis or symptoms.
- Filter your matches based on location, age, gender, and user type.
- Message through private or group chats.
- Safe and secure social networking.
Symptom Tracker
- Track symptoms and take notes to evaluate your condition.
- Export data trends for sharing with doctors and specialists
Rare Disease and Chronic Illness Database
- RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms.
- The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD).
- Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity.
.Global Disease map
- Search the global disease map to see where certain diseases are more or less rare.
- Find out how many RareGuru users share your diagnosis in any location.
Rare Charities
- RareGuru spotlights organizations serving the rare disease community.
- Users can select their favorite rare charities during onboarding.
RareGuru helps connect and support those experiencing rare diseases. Download today and join us.
RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the resources and the social health group you need to thrive.
Connect with knowledgeable and motivated patients and caregivers like you. Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process.
Get support from people who share your disease. Find and show support for chronic diseases, depression, symptoms and more with a network of patients and caregivers.
Share as much or as little about yourself and your condition as you’d like. Whether you have a chronic illness, newly identified disease or a mental disease, what you share with whom is your decision.
Don’t let your disease isolate you from the world. Connect and learn together with RareGuru.
RareGuru Features:
Connect, Share & Network
- Create a private or public profile sharing what information you’re comfortable with.
- RareGuru matches you with other users who share a similar diagnosis or symptoms.
- Filter your matches based on location, age, gender, and user type.
- Message through private or group chats.
- Safe and secure social networking.
Symptom Tracker
- Track symptoms and take notes to evaluate your condition.
- Export data trends for sharing with doctors and specialists
Rare Disease and Chronic Illness Database
- RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms.
- The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD).
- Diagnoses not yet in the disease database earn a unicorn icon to indicate the rarity.
.Global Disease map
- Search the global disease map to see where certain diseases are more or less rare.
- Find out how many RareGuru users share your diagnosis in any location.
Rare Charities
- RareGuru spotlights organizations serving the rare disease community.
- Users can select their favorite rare charities during onboarding.
RareGuru helps connect and support those experiencing rare diseases. Download today and join us.
File size: 37766144
Launched countries: USAUCAGBIENZ
Minimum OS version: 14.0
Release Date: 1587757991000
Published by RareGuru, LLC
Website url: https://rareguru.com
Publisher country:
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