EpiCentr: Seizure Detection

I don’t have help immediately at home often. My husband works as an EMT and OTR truck driver so he is rarely home. This alerts close friends and family if I need help and cannot call. So far it has truly been the best app yet. The free version works, you can journal notes in. Truly considering the paid version for how well I love the free version. It puts everyone around me at ease. It will however, drain your phone and or watch battery faster than otherwise experienced but that’s a small price to pay for knowing someone’s going to be aware if I’m not. Edit to say: I added the paid version and it really helps. I have enough people alerted if I seize now that I genuinely feel safer. I can also pull the reports for my heart rate. Love this app- its life changing for us ❤️

I’m brand new to epilepsy. Right now, I mostly using the app’s journal to record the various focal aware seizures I’m having (because it appears I’m not actually going crazy). And they just added medication, so I’m trying to get in the habit of that. I do have my son and husband set up as emergency contacts. Haven’t used that feature yet. Don’t really see myself using the sleep feature anytime soon. Wouldn’t love to have my profile synchronized with my Apple Medical ID, so I could have seizure records, diagnosis, med allergies, meds taking, surgery history, etc all in place (if they can’t sync, maybe your own medical ID that’s better?) and make it easier for hospitals and EMT’s to access the medical ID when we’re unconscious. Apple says it’s easy, but the hospital couldn’t handle it at all and I was still post seizure so only had 4 functioning brain cells, none of which knew how to work my phone.

As a parent of a child with epilepsy, this app has been worth every penny. We sleep better knowing our child is actively being monitored even while we’re all sleeping. Yes, we get some false alarms, but they’re easy to deactivate before contacts are notified. One thing I didn’t expect to be so useful, but am forever thankful for, is the night audio monitoring. Paired with the Apple Watch health heart data, we’ve detected subtle nocturnal seizures. Time stamped audio picked up automatisms (lip smacking, swallowing, grunts) and the detailed Apple Health heart monitoring picked up the tachycardia spikes. We were able to present this data to the neurologist and adjust meds. I wish the app itself had more detailed HR data beyond range during a monitoring session and active bpm. Having detailed HR spike data would be very useful. Worth noting is that monitoring revealed tachycardia issues, so until we get that addressed with cardio and neuro, our HR notification range has to be pretty high or we’d be getting alerts all the time. This limits the app’s nighttime heart rate spike notifications we would otherwise be getting at night. We could lower the notification range at night, but chances are, we’d forget when our child goes to school and then it would be alerting all day. That’s on us, not the app developers. Also, the support team is wonderfully responsive and informative. We had a connection issue between the watch and phone they quickly helped resolve the problem.