Lumia: Manage Your Dizziness

Update to the update, reduced stars as the app’s accessibility continues to move in the wrong direction. Hoping future updates support the dysautonomia crowd this device was originally created for. UPDATE: a year+ in and still unable to tag typical POTS/ chronic illness body positions, common POTS/OI symptoms, flow impacting events, or create custom tags. Tag requests have so far been ignored while “nice to have” features have been implemented, and helpful graph data has been removed, leaving us guessing how our flow averages change with body position. Why remove such a critical piece of information? We continue to look forward to the core features being implemented (tagging to spot trends). Hoping beyond hope that this company can remain successful in the competitive wearables market. Previous: 5 stars for this groundbreaking step in the right direction. But incredibly early stage development, impacting functionality (basic body position tags and tags needed to test functionality are not available yet 6 months post launch, tags block data, removing all tags leaves you relying on memory as to the timeframes when looking at flow lines, battery dies unexpectedly, bugs on pre-release are not resolved before rolling out to the rest of users, etc). Big changes with each update, so it’s a very exciting time, but definitely too early for those needing a plug and play situation.

I’ve been wearing one of the production-line Lumia devices for a few days now, and it’s already life-changing. I have hEDS, vague dysautonomia and cranio-cervical instability. I’ve told people before that “I think I don’t have enough blood in my brain today,” but never had anything more explicit than that. Now I do, and that knowledge means that when blood flow gets low - I can DO something about it!! Drink electrolytes; put on compression; do some PT; wear a back brace; lay on the floor a while - it all helps. And now I can see it helping in real time. This deserves 5 stars because it is truly life-changing technology. I feel like I have a plan for managing my health for the first time. But fair warning to people that it’s still early, experimental and fiddly. Bugs I’ve dealt with: 1. Poor and inconsistent syncing behavior, resulting in having to restart the app several times a day. 2. Strange bugs in the chart UI that make lines disappear, or connect the wrong set of dots. 3. I can only sync when I’m within 20 feet of my plugged-in light station - so no data when out and about. (Direct to iPhone sync is supposed to be coming, I hear?) 4. Battery life estimation is way off - I thought I had plenty, turned on Live Mode and it suddenly flipped off and needed a charge. Despite all of that, it was 100% worth the two years of wait. I literally wouldn’t have this data otherwise, and as I’ve learned - it’s absolutely critical to my well-being. Thanks y’all for working so hard on this project. I know this device is the first of its kind, which makes pulling this off all the more difficult. I’m really impressed.

It’s been so amazing to see my flow vs my symptoms. I feel validated and it’s great to be able to track so many things in one app! I love the symptoms tracker with SO many options! Thanks Lumia!